Evan Fasciano is a happy 5 year old boy with a severe genetic disorder known as “Harlequin Ichthyosis”. He was diagnose of this condition exactly two days before his birth in 2010. This condition makes his skin grow ten times the normal rate. And also leaves his entire body with scales. His mother, De De says she has to bath him several times to keep him looking fresh as she takes off excess skin production on his body.
It has not been an easy path for the family of Evan. And even more devastating, there is no cure for this disease. But the family has been consistent in making Evan peaceful as he grows in this condition.
Evan is very famous at school and loves to play with his little brother Cenzo.
“Two are better than one, because they have a good return for their labor: If either of them falls down, one can help the other up. But pity anyone who falls and has no one to help them up. Also, if two lie down together, they will keep warm. But how can one keep warm alone? Though one may be overpowered, two can defend themselves. A cord of three strands is not quickly broken.” Ecclesiastes 4:10-12
“Love does no harm to a neighbor. Therefore love is the fulfillment of the law. “Romans 13:10
Hope this story of Evan becomes a reason for you to thank God for life each day and the chance you have to be a better person. That you having a healthy life and body growing each day is not by mind nor by power but by the Spirit of God present in you. You do not have to surrender your own life to suicide and abuse for others wished they has that wonderfully made body you have.
FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. Suffering from the severest form of the disease, Evan is at constant risk of infection – requiring him to have two baths a day so 33-year-old mum De De can scrub off the excess skin. Currently there is no cure for Harlequin Ichthyosis, but despite his condition Evan remains a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo.
Posted by Barcroft TV on Monday, April 9, 2018
God also edges us to love every creation He has made, regardless of what they are. Stay blessed and have an inspired week. Amen!!